37 () posted 1 year ago by ThatsAlright 1 year ago by ThatsAlright +37 / -0 8 comments share 8 comments share save hide report block hide replies
My sister has Ehlers Danlos. It's so rare science has a hard time studying it. She had surgeries to correct it and is living her life. Those surgeries were paid for by private organizations, and she had stuff like the Ronald McDonald house.
This contrast is maddening.