I'll say this: declaring that you have a bunch of mysterious, vague, and of course improperly/untreated "immune conditions" is textbook munchausen's, especially when it comes from a younger, wealthy woman. So I'd be very careful taking any of this at face value.
Of course, that's not to say that things like EDS don't exist, and she very well may have been the one in a million to actually have a bunch of rare disorders, but all it takes is one look at the "spoonies" community to see what they truly are.
Other red flags include:
Tweeting numerous times a day about how hard life is
Self-identitying as "disabled"
Insisting on unnecessary TPN (they all do this for some reason)
Frequent and inexplicable stays in the hospital which achieve nothing
Unemployed
EDS in particular seems to be very popular among illness fakers
I don’t reckon many doctors would sign off on taking out an eye, or permanently destroying someone’s body, or indeed stick that “halo” device on someone who had Munchausen’s… Let alone the three, I believe, doctors who had to sign off on the VAD order…
So, while in principle you’re right, I… Doubt it, in this case.
Who knows? But in the end, she’s dead now, so I guess we never will know…
You'd be surprised what you can achieve from doctor shopping. Look hard enough and you'll find a doctor who will do absolutely anything as long as you can pay for it.
However, it would be extremely unusual for a munchie to have an eye taken out. The headgear isn't permanent, is very conspicuous, and screams "I am disabled", so it's a munchie's dream, but I'm pretty sure even the most dedicated attention whore would stop short of enucleation. So in this particular case I'm willing to say we've found the rarest of specimens: a young woman who actually has (or had) a rare immune disorder.
This is unfortunately one of the rare cases where allowing euthanasia DOES make sense with the consent of the person of course but will be mistreated and used as an example of why it should be opened up to doctors can treat humans like horses if they break their leg.
Yeah. It's just unfortunate that instead of, I dunno, researching extensively into treatments for these various diseases, we would rather just remove the problem, as it were...
But I agree that in her case it was probably the "best option". But it shouldn't have been. I guess that's the point, unfortunately...
But I admittedly wouldn't want to keep living like that either, so... Yeah.
rare cases...will be mistreated and used as an example of why it should be opened up
It's one of their favorite tactics. Rape and incest for abortion, gay couples can't make healthcare decisions, as well as many lies by omission or obfuscation to mislead people about historical events.
That was one of the arguments for gay marriage, when it was a tiny, tiny, tiny, tiny percentage of people who experienced that, and was basically meaningless. It was an emotion ploy to get their way and push the agenda that had been decided upon.
To go into the specifics, it was basically when one member of a homosexual couple had some health issue (and generally needed to be in a coma or otherwise unresponsive, I'd assume), and couldn't make their own decision, and their partner didn't have permission to make those decisions, so it fell to their "hateful, homophobic family" instead. I'm sure it happened, but it doesn't even make sense to act like it was happening on the large scale, but that was the mainstream argument, and no one really questioned it. As I said, it was a statistically insignificant thing that was used as an emotional wedge issue.
Similar to how statistically almost no abortions are due to rape or incest.
The second largest problem I have with all this is that I know how it will be weaponized against my fellow whites in the future. A catch-all solution proposed by those in power.
She had a bunch of other comorbidities (at least one of which sounded much, much worse) but also, yeah…
In the article it mentions one of her friends who was there at the end having the other rare condition (can’t remember the name), but not Ehlers-Danlos, and she looked much less sick, so maybe… It’s the combination, and, as you say, the spectrum of possible effects…
It’s like with the two autoimmune conditions I have. One is completely invisible most of the time, and the other is hardly noticeable, too, because I “mask it” pretty well…
And yet there are other people for whom the onset -> terminal/severe disability process takes much, much less time, so… These things are inherently random, which is partly what makes them so frustrating…
I’m guessing it doesn’t normally necessitate removal of an eye, right?? So that must have been whatever else she had shivers…
Honestly, from what I’ve seen of similar past cases like this, with rapid decline, it’s the combination and interaction of the various conditions that seems to lead to the worst outcomes…
Hers sounded and looked particularly brutal, so, for the sake of the person you know, I sincerely hope that the combination of it all is exceptionally rare, as the article sort of points out/alludes to… 😑
Occasionally I (and others) post things where the images will haunt you a bit... Not because they're "NSFW", but just because they're deeply sad/make you feel bad...
The article linked there is one of those.
I recommend not... Taking it in, too much, because it just... It fucking sucks to see someone in that state, whoever they might be. Like, the "before" and "after" photos, if you will, are... Pretty harrowing.
Read it, and then have something more uplifting, or at least less bleak, prepared for afterwards, maybe.
Here's an alternate take from someone else with EDS (shitty media org, but the take is.. reasonable, I guess, if you can handle the inherent bias of the site): https://archive.is/koTUH
As someone with a couple of much less crippling (at the moment, at least) autoimmune conditions, none of this is... Exactly "gratifying" to read... :-/
I'll say this: declaring that you have a bunch of mysterious, vague, and of course improperly/untreated "immune conditions" is textbook munchausen's, especially when it comes from a younger, wealthy woman. So I'd be very careful taking any of this at face value.
Of course, that's not to say that things like EDS don't exist, and she very well may have been the one in a million to actually have a bunch of rare disorders, but all it takes is one look at the "spoonies" community to see what they truly are.
Other red flags include:
Tweeting numerous times a day about how hard life is
Self-identitying as "disabled"
Insisting on unnecessary TPN (they all do this for some reason)
Frequent and inexplicable stays in the hospital which achieve nothing
Unemployed
EDS in particular seems to be very popular among illness fakers
Did you see the photos in the article, though??
I don’t reckon many doctors would sign off on taking out an eye, or permanently destroying someone’s body, or indeed stick that “halo” device on someone who had Munchausen’s… Let alone the three, I believe, doctors who had to sign off on the VAD order…
So, while in principle you’re right, I… Doubt it, in this case.
Who knows? But in the end, she’s dead now, so I guess we never will know…
Unfortunately.
You'd be surprised what you can achieve from doctor shopping. Look hard enough and you'll find a doctor who will do absolutely anything as long as you can pay for it.
However, it would be extremely unusual for a munchie to have an eye taken out. The headgear isn't permanent, is very conspicuous, and screams "I am disabled", so it's a munchie's dream, but I'm pretty sure even the most dedicated attention whore would stop short of enucleation. So in this particular case I'm willing to say we've found the rarest of specimens: a young woman who actually has (or had) a rare immune disorder.
This is unfortunately one of the rare cases where allowing euthanasia DOES make sense with the consent of the person of course but will be mistreated and used as an example of why it should be opened up to doctors can treat humans like horses if they break their leg.
Yeah. It's just unfortunate that instead of, I dunno, researching extensively into treatments for these various diseases, we would rather just remove the problem, as it were...
But I agree that in her case it was probably the "best option". But it shouldn't have been. I guess that's the point, unfortunately...
But I admittedly wouldn't want to keep living like that either, so... Yeah.
It's one of their favorite tactics. Rape and incest for abortion, gay couples can't make healthcare decisions, as well as many lies by omission or obfuscation to mislead people about historical events.
..? 🤔
Context?
That was one of the arguments for gay marriage, when it was a tiny, tiny, tiny, tiny percentage of people who experienced that, and was basically meaningless. It was an emotion ploy to get their way and push the agenda that had been decided upon.
To go into the specifics, it was basically when one member of a homosexual couple had some health issue (and generally needed to be in a coma or otherwise unresponsive, I'd assume), and couldn't make their own decision, and their partner didn't have permission to make those decisions, so it fell to their "hateful, homophobic family" instead. I'm sure it happened, but it doesn't even make sense to act like it was happening on the large scale, but that was the mainstream argument, and no one really questioned it. As I said, it was a statistically insignificant thing that was used as an emotional wedge issue.
Similar to how statistically almost no abortions are due to rape or incest.
The second largest problem I have with all this is that I know how it will be weaponized against my fellow whites in the future. A catch-all solution proposed by those in power.
I know someone with Ehlers-Danlos. There must be a spectrum because that person is completely fine...
She had a bunch of other comorbidities (at least one of which sounded much, much worse) but also, yeah…
In the article it mentions one of her friends who was there at the end having the other rare condition (can’t remember the name), but not Ehlers-Danlos, and she looked much less sick, so maybe… It’s the combination, and, as you say, the spectrum of possible effects…
It’s like with the two autoimmune conditions I have. One is completely invisible most of the time, and the other is hardly noticeable, too, because I “mask it” pretty well…
And yet there are other people for whom the onset -> terminal/severe disability process takes much, much less time, so… These things are inherently random, which is partly what makes them so frustrating…
I’m guessing it doesn’t normally necessitate removal of an eye, right?? So that must have been whatever else she had shivers…
Honestly, from what I’ve seen of similar past cases like this, with rapid decline, it’s the combination and interaction of the various conditions that seems to lead to the worst outcomes…
Hers sounded and looked particularly brutal, so, for the sake of the person you know, I sincerely hope that the combination of it all is exceptionally rare, as the article sort of points out/alludes to… 😑
Ahh ok not THAT Lily Thai.
If I search this up, I just get this case, lol (I presume unless I use a VPN to do so), so…
Prom star or something? 😅
There’s a restaurant in NSW also with this name!
Yeah, I found it eventually, too…
And nah, different chick. I think the porn star is Hawaiian or something. They don’t look alike at all, lol…
However that would be… Amusing.
Italian Filipino Hawaiian… 😍
I think she runs a babysitting service or something. Google “Lily Thai Babysitter” 🤣
Occasionally I (and others) post things where the images will haunt you a bit... Not because they're "NSFW", but just because they're deeply sad/make you feel bad...
The article linked there is one of those.
I recommend not... Taking it in, too much, because it just... It fucking sucks to see someone in that state, whoever they might be. Like, the "before" and "after" photos, if you will, are... Pretty harrowing.
Read it, and then have something more uplifting, or at least less bleak, prepared for afterwards, maybe.
Here's an alternate take from someone else with EDS (shitty media org, but the take is.. reasonable, I guess, if you can handle the inherent bias of the site): https://archive.is/koTUH
As someone with a couple of much less crippling (at the moment, at least) autoimmune conditions, none of this is... Exactly "gratifying" to read... :-/